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Archive for the ‘APS’ Category

Let’s start with the relief. My blood isn’t totally broken. In fact, it is just the way it has always been. The report was “slightly elevated anticardiolipin IGM antibody”. Funny thing is, this has always been the report.

So to the pissed off part… why was I diagnosed with APS. Why was a sat down last September and told to brace myself before being told I had a disease (that I truly do not have)?

Why have I been to two different Hematologists and a Maternal Fetal Specialist and no one is on the same page with what is wrong with my blood? Why have I had to give over 28 vials of blood so far and there be such confusion?

I have to admit, I am really losing faith in the medical community. My husband makes this joke (though it isn’t a joke); “That is why they call them PRACTICING physicians”.

So, I shall continue to take my aspirin daily, since I have elevated coagulants. Otherwise, I guess everything comes on a case by case basis from now on. I am sure after surgeries and during pregnancies I will be monitored more often, but I no longer have the label!

Onward I go.. with no more knowledge today than I had yesterday. Peace out!

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My blood is broken, or so I have been told. Two panels of testing have come back broken, but I don’t believe it. Those were both last year.

I went back today to get a 3rd opinion (I am not one who is easily convinced) and they took 14 vials of blood from my veins. I wish I could understand everything they are testing for, but I don’t understand it all. APS is the main one.. the one I have been told I have. Antiphospholipid Antibody Syndrome.. Hughes Disorder.. the syndrome that causes your blood to clot more than it should. The one that causes the tiny blood vessels leading to a newly formed placenta that is feeding a tiny growing human to clot, and eventually suffocate the growing child. The one that makes my husband grow more and more concerned about having another child, for fear he might lose his wife in the process. I HATE APS.

Hopefully in two weeks when I go back the the Hematologist I will get good news, that everyone was wrong and that my blood isn’t broken. I hope and pray that is what they find out. I want to be normal and I want to carry another child and bring that child home with us to be part of the family someday.

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